Organizations & Associations
Citizens United for Research in Epilepsy (CURE)
730 North Franklin Street, Suite 404
Chicago, IL 60610
312-255-1801
www.CUREepilepsy.org
Epilepsy Foundation
8301 Professional Place
Landover, MD 20785-7223
800-EFA-1000
www.epilepsyfoundation.org
Epilepsy.com
Comprehensive on-line information on Epilepsy for patients, families and healthcare professionals.
www.epilepsy.com
www.epilepsy.com/professionals
The Epilepsy Institute
257 Park Avenue South, Suite 302
New York, NY 10010
212-677-8550
www.epilepsyinstitute.org
Epilepsy Therapy Project
P.O. Box 742
Middleburg, VA 20118
703-437-4250
www.epilepsy.com
National Institutes of Health (NIH)
9000 Rockville Pike
Bethesda, MD 20892
301-496-4000
www.nih.gov
National Institute of Neurological Disorders and Stroke (NINDS)
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
800-352-9424
TTY 301-468-5981
www.ninds.nih.gov
US Food and Drug Administration
1-888-INFO-FDA
www.fda.gov
General Information and Resources
United States National Library of Medicine
Official National Institutes of Health site
www.nlm.nih.gov
Reuters HealthOnline
Medical News
www.reutershealth.com
Mayo Clinic
Health and medical information
www.mayoclinic.com
U.S. Department of Health & Human Services Healthfinder
A guide to medical information on the Internet
www.healthfinder.gov
Intelihealth
Home to Harvard Medical School health information
www.intelihealth.com
Journals & Publications
FDA Consumer
Official magazine of Food and Drug Administration
www.fda.gov/fdac
Books
A Guide to Understanding and Living with Epilepsy
Devinsky, O. A Guide to Understanding and Living with Epilepsy. Philadelphia: F.A. Davis Co., 1994.
This easy-to-understand resource book covers a basic understanding of epilepsy and a wide range of medical, social and legal issues.
Living Well with Epilepsy
Gummit, R.J. Living Well with Epilepsy. 2nd ed. New York: Demos Publications, 1997.
This book encourages people with epilepsy to take a more proactive approach in managing their lives. Includes chapters by leading epilepsy experts.
Epilepsy and the Family: New Guide
Lechtenberg, R. Epilepsy and the Family: New Guide. Cambridge: Harvard University Press, 1999.
A useful resource of answers to questions that people with epilepsy and their families might not think to ask their doctors, including the physical and psychological effects and the effect on the family.
Helpful Tools
Store valuable information with these printable tools:
- Questions for Your Physician (PDF)
- Physicians You've Spoken With (PDF)
- Medications You're Taking (PDF)
- School Contact List (PDF)
- Questions to Ask Your Physician About Your Child’s Medication (PDF)
- Wallet Card (PDF)
Keeping Track of Your Seizures
Help keep your doctor informed on how well you or your family member's treatment is working.


